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Amplifying the Patient Voice: Exploring the Barriers and Needs of Rare Disease Patients & Caregivers


$79.00 (Non-Member Price)
$0.00 (SCRS members – Included as member benefit, no additional cost)

Not an SCRS member? Join now to attend this webinar at no additional cost.


Date and Time: December 13, 2022 @ 12:00 PM ET


Presented by Clincierge


Contact Hours: One contact hour will be issued.
Contact Hours are not available for archived webinars.


Presenter:
Pam Guthrie, Director of Sales and Marketing, Clincierge


Description:
 This webinar will share insights from rare disease patients and caregivers, focused on the patient perspective in clinical trial participation. 

Hear results from an in-depth quantitative research study exploring the emotional, financial and logistical burdens experienced throughout the clinical trial and what the industry can do better to overcome the hurdles patients face. 

During this webinar you will:
    1. 1. Gain insight into the perspectives of patients enrolled in a clinical trial, as well as the opinions of their caregivers
    2. 2. Delve deeper into the emotional, financial, and logical burdens deterring clinical trial participation
    3. 3. Discuss ways for sites and sponsors to Increase patient=centricity in clinical trials, sharing current available services and ideas for new products


Speaker Bios: 

Pam Guthrie
Director of Sales and Marketing
Clincierge

Pam Guthrie brings over 20 years of experience in sales, marketing and account management to her roll as Director of Sales and Marketing at Clincierge, the world's leading provider of patient support services for clinical trial participants. Pam has extensive experience in marketing communication, creative and research project management, client relationship building and general business management. Her brand-building experiences spans local, national and international clients in business-to-business and business-to-consumer categories, including Bacardi, Nasdaq, Royal Caribbean and Ben & Jerry's. 

Society for Clinical Research Sites, Inc. is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

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To obtain your Contact Hours for this webinar:

  1. The webinar must be watched in its entirety.
  2. The post webinar survey immediately following this webinar must be completed in its entirety.
  3. Your contact hour certificate will be sent to you within 30 days of you viewing this webinar.
  4. The contact hour certificate will be sent to the email address provided when you registered.

Planners, presenters, faculty, authors, and content reviewers do not have any relevant financial relationships with any commercial interest.

This webinar does not imply any endorsement of products or services by the Society for Clinical Research Sites or ANCC.

The materials and recording of this webinar will be available for one year as an archive, but will not award any contact hours.


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